About us

The Tuberous Sclerosis Association (TSA), founded in 1977, is the only UK charity focused on improving the lives of people affected by the rare genetic disorder Tuberous Sclerosis Complex (TSC). The TSA aims to provide help for today and a cure for tomorrow by:

• Providing practical and emotional support through our support and information services for the TSC community, including through our UK-wide TSA Support Line
• Organising events and opportunities across the UK and virtually for those affected by TSC, allowing the TSC community to come together and feel less alone
• Funding internationally-significant research into the causes, diagnosis, management and treatment of TSC that has the greatest impact on those affected by the condition
• Campaigning on behalf of the TSC community to ensure that the TSC community has consistent and meaningful access to social support and healthcare provision

Through the TSA, the TSC community should never feel alone.